#25 Frosties ...... They're Grrrrrreat!

25th March 2013
I originally started writing this at 3am while sat sucking on ice, because my mouth felt like i'd been chewing on a brick, I really ought to see someone about my teeth grinding. but who, seeing as I hate dentists with a passion. But anyway, I deleted what I started because it didn't make a great deal of sense.
Also, a lot of it was composed on my phone while sat on a bus, so I can imagine that it's still doesn't make much sense. I'm also in a better mood than I have been all day, so you may notice, most of what I've written is a bit doom & gloom, interspersed with silly bits (I'm not manic/depressive or anything)

It's fair to say our journey has been full of ups & downs throughout, & today alone we've relived them all.
I don't think either of us got a great deal of sleep last night, I'm not entirely sure if it's down to excitement or nervousness. Which ever it was, it already set my day off on a downer... It doesn't take much, believe me. All I can say is thank The Lord for caffeine!
Being a glass half empty kinda guy & always expecting the worse. I'd been dreading the call from the clinic all morning, the call that should say "the embryo has thawed ok, come & have it stuck in ya" (maybe it'd be worded better with them being professionals & all that) But I had a feeling this wasn't going to be the case at all, & when the call came in at 11.30, my suspicions were confirmed. The thaw was unsuccessful. To say I was gutted would be an understatement.
Me, being me, I stormed off & decided not to acknowledge it & continue cleaning the kitchen.
(yeah, you read that right, I am a man that cleans the house)
The embryologist wanted to thaw both the remaining just to improve the chances of survival. But that news really didn't do anything to improve my mood, I was already set to strike this part of the journey off as just another failure.
What's the best thing to do when your fast approaching the time to leave the house to go to the clinic? Take off your clothes & get in the shower. As I've previously stated in older posts that we're masters at cutting things fine, we don't do early (or at least not very often) & we seem to thrive on the chaos of trying to get their on time.
The whole journey to the clinic was a long silent one, I couldn't even make the effort to get angry at Bruno Mars on the radio (I hate Bruno Mars more than I hate dentists & needles combined, & don't get me started on dentist WITH needles) but bizarrely enough, considering the shower episode, we were still going to be there early. & therefore had time to stop for food, Which was the only time we spoke throughout the whole journey, well when I say 'spoke' it was only yes's & no's. Anyway we're still early ... Dammit
Sitting in the waiting is normally quite a pleasant experience because overtone is quite friendly & smiling, but today was like waiting for a death sentence & the news that embies 2 & 3 hadn't survived either. By the time we were shown to our private recuperation room, I had a change of heart & opted to stop being a dick & just hugged Libby. The healing power of a hug is the best drug ever #fact!
As usual the nurses were being very attentive, making sure we're ok & if we need anything
The I get asked the hardest question, do we want both embryos placing & if we decide to use both, we need to understand we're doubling the chance of success, & risking multiple births (& here's the punch line) doubling the risk of another ectopic pregnancy. I'm shit at making any kind of decision, let alone one of this kind of magnitude! Aaaaarghhhhh brain meltdown! To make it harder, Libby looked at me to answer. I knew that she had already chose what to do, but wanted me to say the words. So here's the dilemma: if we use one frostie & if fails, we'll always think 'what if we'd used two, it might have worked' & if we use both& we get hit with another ectopic, I'll be of the mindset 'what if we'd used one, would it have worked out ok?'
I chose both
And here they are. I've named one of them Tony (the tiger, from the Kellogg's Frosties cereal) & the other is yet to be named (answers on a postcard...)

Now I'm praying to a god that I don't believe in, failing that, will someone beat some positivity into me?
I'm now gonna step away from this blog for a couple of months, just until I know everything is ok with my wife & kid(s?) & I don't want to jinx things by announcing any pregnancy too early.
Also if it's not alright, well I'll face that bridge when we come to it

Thanks for reading & I'll be back soon
Paul

Not really a blog post, more of a public information broadcast

22nd March 2013
Thankfully, my mind has switched off from over analyzing every little detail, So I thought i'd do something productive with my time.
Here's some really good webpages for help & advice, or just somewhere to go to vent your spleen

Infertility Support UK: www.facebook.com/groups/125220884314261/
A lovely group of ladies who are all at various stages of treatment, I'm the only bloke there. But i've been made to feel very welcome

IVF Cause UK: www.facebook.com/IvfCause?fref=ts
Lots of good info posted most days. Moderated by the lovely Donna

Infertility Sucks: www.facebook.com/Infertility2012
Some really good questions asked & answered

IVF: www.facebook.com/pages/ivf/127102485433?fref=ts
A friendly community for people to share their experiences and problems with other members

IVF Divas: www.facebook.com/IVFDivas?fref=ts
3 girls at 3 stages of Infertility (Testing / IVF Treatment & IVF Survivor) representing the Infertile & TTC, community, campaigning for awareness, social sensitivity, equality and support.

Fertility Friends: www.fertilityfriends.co.uk

Care Fertility: www.carefertility.com/

I'll probably add more when I remember them

#24 Always look on the bright side of life.... You just have to find it first, & if you don't find it, Make your own

20th March 2013

I'm really struggling to find any positivity in our journey today, no matter how hard I try, I can't seem to shake my doubts & fears, & the whole farse at work over the last few days really hasn't helped in the slightest.
In the end, I thought it wise to speak to my area union rep, (even though i'm not actually in the union) just for a bit of advice on what I should do & maybe weigh up the consequences of my actions if I didn't show up for work. Surprisingly he was really understanding, having actually been through it himself.
I explained my plan to sit down with my manager & explain what it means to me to be there & try & not lose my cool again, But he had a better plan & wanted to speak to my manager himself. The next thing I know is, the sound of raised voices & slamming doors (oops) I do know what was said, but I don't think I can go into too much detail just incase there is any of the powers that be within Royal Mail reading this.
Anyhoo, It's now sorted & I've got the day off, I just hope to a god that we don't need many more appointments.
So that's that problem solved I really need to stop being a sour face

Normally under any kind of normal circumstance i'd avoid watching any TV programming about babies & birth such as 'One Born Every Minute' on Channel4, But tonight the BBC are running a night of baby programs. Like an idiot I thought it might do me good to watch it. I assumed the happiness of people might rub off on me & improve my outlook on the subject. Did it work? ...NO! & i'm not surprised really, I have no idea why i thought that it would do.
I think I managed around half an hour before I had to turn off. I found myself getting angry & frustrated at the couples who were successful. But what really hit me hard, there was a girl who had gone for a scan & found no heartbeat, it turns out the baby had died at 11 week & her body didn't know she had miscarried. that hit me like a ton of bricks & then all I could think about was (our previous losses) Eggbert & Nemo. Time for a shower me thinks
Quite possibly the longest, most therapeutic shower of my life. I found myself repeating to myself  "I'm washing away my negativity" ....Yes I think I've finally lost the plot


21st March 2013

It appears my crazy shower idea has worked, I feel a bit more human today. & life seems a little TOO normal, but I'm not complaining

#23 I think i'm broken

19th March 2013

Oh what a truly fucking horrible day! (sorry for the bad language)
After yesterdays good news at the clinic, it seems like everything is crashing down around me.
Yesterday, I threatened to quit my job, because i was refused time off, but then thought things should have been alright because the embryo transfer is going to take place next week instead, but it now turns out i'm probably not going to get that day off either. & from what i can gather, there is absolutely nothing I can do about it
"There is no automatic right to time off for fertility treatment but time off for medical appointments related to fertility should be treated in the same way as any other medical appointment under your employer’s policy"  Because it's not me personally having the procedure done, I seemingly don't have a leg to stand on.
this has been constantly rattling around my head all day to the point that i've not been able to think about anything other than this & it's driving me crazy, I've made so many mistakes & delivered tons of mail to wrong address's (& if anyone complains I will not be held responsible for my actions) Now I just feel absolutely drained & void of any kind of enthusiasm. I'm now seriously considering quiting my job, because I don't believe Royal Mail is a company I want to work for anymore

I decided to phone CARE, just to check whether or not I need to be there, & it turns out I don't because I've already signed all the necessary consent forms. You think that'd make things clearer & i'd be happy to go to work. No chance, I feel just as shitty! Because I'm a hardcore pessimist misery guts, all I can think of now is, if anything goes wrong & I'm not there, I will hold myself & probably even my manager responsible. I need to be there for my own sanity. It's all messing with my head & it's freaking me out BIG TIME! I'm starting to wish everything would just stop

#22 Trying to think of a title is hard

March 4th 2013
We never thought for one minute we’d ever be eagerly anticipating the start of a monthly bleed, especially With the fact that endometriosis & irregular periods has pretty much meant a lot of unwanted bleeding & misery over the last 10+ years. 

As soon as her cycle starts, she can start the Climoval to prepare the lady bits for the FET (Frozen embryo transfer)

I appear to be in the doghouse right now. My band have got a last minute gig booked for around the time we'll be having the FET, & to add insult to injury, it's also on the day of Libby's birthday, As much as I hate pulling out of playing live (I've never done it...I leave that unprofessional people) I'm going to have to bow out, as much as music is my life, my wife & a chance of completing my family have priority over everything. Thankfully the lads are quite an understanding bunch & are going to do a stripped down performance without this balding noise addict hitting things at the back... so yeah my life has been spared & my marriage is saved

March 9th 2013
As luck would have it we've managed to get an appointment sorted at CARE for the Monday after Libby's birthday & i've been given the go ahead to make noise with the band, to save them from being unrehearsed & on the chaotic side, now it's going to be unrehearsed ... but great fun all the same

March 10th 2013

It's safe to say the combination of meds/endo/period, hasn't really agreed with Libby much this week. It's horrible seeing her in pain & unhappy, but you have to keep telling yourself it's all means to an end & it's what we want, no matter how horrible things get.

I wish more people would understand how painful & emotionally draining IVF & infertility in general is. & that it isn't just a quick fix solution to not being able to conceive. Once again i've had the 'if the ivf doesn't work, it'll happen naturally in it's own time' Yes this might be the case for some people, but not for us, we can't conceive for medical reasons. 
Also, this last week or so that things have been up in the air with the band, i've ended up losing my temper with someone I used to consider a close friend. He was due to help out for the gig i wasn't going to do, but now because I am doing it, he was felt the need to have a pathetic dig at me, for inconveniencing him & wasted his Thursday night because he had to rehearse when it wasn't required.
Well i'm so sorry that my future is less important that your couple of hours on a thursday night.
The reason i wasn't going to do it was my wife might need to take it easy & be stress free, because she could be carrying my freshly implanted child. So because we're not at the clinic until after the gig, I thought i'd be a good mate & help out by doing what mates do. Only to be vilified ...Gee thanks!

March 17th 2013I did the gig last night & it was awesome, the best yet. but my 'mate' who caused the previous rant, STILL doesn't get it & felt the need to have another dig, but this time for losing my temper. One upon a time he's have admitted he was wrong an apologise, strange how people change isn't it.
It seems to me people who don't understand or are ignorant towards IVF & the baggage that comes with it, are the people who don't seem to have a problem having children?

March 18th 2013
Today is a day of firsts, We set off early & we're actually half an hour early for an appointment. Shame that it was in vein, for the first time ever we have been kept waiting 45 minutes to see the nurse. DAMMIT! Typical huh? #note to self...Don't be organised, chaos is much better
Libby is not happy about the fact that the need to take blood as well as being probed in places that most people wouldn't be probed if they had the choice.
It's seems seems that the meds have had the desired effect & it's looking good, but it also looks like it's had a undesired effect too... the return of the ovarian cyst, but this time it's roughly 1cm bigger than before, which could explain a lot of the pain that Libby has been getting.
So now we're just waiting to find out what the blood results have to say & I'm just hoping this cyst doesn't delay things again. If not we could be looking at later this week for the transfer.

On a very rare occasion public transport hasn't let me down (another 1st) I was back home for 10.30, If i'd have known I'd have been back this early I could have still gone to work after all, so I thought i'd do the right thing & call in to see if there was anything i could help out with, & also inform my manager that i may need another day off this week.
I've previously mentioned how good she's been with me needing time off, so i was actually expecting the same treatment. but NO, not this time, I was told there was no chance at all, because there was no one to cover & then made to feel guilty for needing time off. The problem is I don't have an option, I have to be there, or the procedure won't go ahead, & that's clinic policy. 
But I'm told there is an option & it involve's jeopardising my long term happiness & going to work. SOOOO, I told her, that this is more important than any job & if it come's to it, I will quit my job & walk out. I can always find other work, The way i see it is, I work to live, not live to work

We should hear in the next 40 minutes what the blood results are, & also find out whether or not in need to start looking for anther job


.....& the results are in!
It's looking like I don't need to quit my job just yet. The embryologist will defrost the embies on Monday 25th & we're booked in for 13.30 

AWESOME!!!!!!!

#21 A bit of stuff & nonsense

25/02/2013

I'm finding it hard to keep up with writing this blog. Since the loss we suffered in November, I've tried my best to avoid thinking about IVF & everything associated with it, because the emotions attached a still so raw & I find avoiding issues is good for me, I know I shouldn't bottle things up but it's just how I work. As ive said many times 'I am just a typical everyday bloke' ...& this is how us men deal with stuff, right?
Recently it seems like i'm surrounded by it. Especially this week with the publication of the NICE (National Institute for Health and Clinical Excellence) Infertility guidlines & all thge forore surrounding them

Also daily TV show This Morning in the UK are running an Infertility awareness week. I must admit this is an excellent thing to happen, but it's also set the old grey matter back into action, & that's not such a good thing

Just looking through some of the comments on This Morning's Facebook page, & I'm faced with the reason why we need such a thing as National infertility awareness week. People need educating because they are clueless about infertility or for some reason are so against it,& it's really quite worrying. Lots of comments saying things like 'It's cos they're actively trying, if they just stopped trying, and only had sex when in the mood, they'd fall pregnant quite easily' 
I've had people people say this kind of thing to me no end of this, & yeah, I kinda get that that might be the case for some people, But a lot of infertility issues that most people have are due to actual medical reasons.
I really wish it was as simple as stopping trying, In fact i'd give my right nut to have it that easy (Although, giving up my testicles for the purpose of having kids is kinda counter productive) I'm sure every single couple going through IVF could list the reasons why that argument is so unbelievably flawed
With us, having sex is rarely an option because wifey finds it agonizing due to endometriosis, & even if that wasn't the case theres the small matter of the under performing overies, & a fallopian tube that is none existant, which before was blocked
The thing is pro-creating is a lot harder than just having sex, if it happens without trying, then the people people are lucky (or unlucky, depending on how you look at it)
There was one amazing reply to the post in question from a lady saying 'It's like saying if someone was disabled if they just relaxed and didn't try they could walk again' that brought a little smile to my face

There's also lots of people saying things like 'I do think its sad some people can't have children, but surely the more people conceive through treatments ect, means less homeless children being adopted and given the chance of a loving home?  or  'IVF is wrong, Infertility is gods way of controlling the population, the world is overcrowded as it is'
But adoption isn't always a good solution, it can be sometimes a lengthy & stressful process, & in some cases quite expensive. The adopted kids can also come with a lot of issues which can be quite damaging to family life, believe me I've seen it.
Besides is it not enough that we are registered foster carers?
The funny thing is, all the negative comments come from people who, based on their personal Facebook profiles clearly already have children of their own & therefore have little or no actual experience of infertility, or ectopic/miscarriage
I really don't know why there is so much negativity & vitriol towards Infertility treatments, Would anyone care to try & explain it to me?

I've also come across a few cases of people who have been through IVF or an actual end product of it, That are ashamed of it. This really confuses me.
Its not the easiest thing to go through & it takes a lot of physical & emotional strength, I'm proud of the fact of what we've achieved in the last year the high's & even the lows that we've overcome, to the point that I want to sing it from the rooftops, & lot of this blog is me doing just that.



With our FET (frozen embryo transfer) fast approaching (about 3 weeks time) It's had me looking forward to the future & what it has instore for us. It got me thinking about if we can actually afford to raise a child in this day & age, where money is not all that easy to come by. So I've decided to take a step closer to becoming a 'responsible' adult. I've decided to give over with achieving nothing & earning very little in dead end jobs, So I've took my first step on the career ladder, I've applied for a deputy manager position with Royal Mail. I still won't be rolling in money, but it's certainly a step in the right direction



The downside to the closeness of our next chapter, is that i've had to do one thing i absolutely hate doing & that's pulling out of a show with my band on March 16th. but as much as I hate doing it, My lady deserves my undiveded attention. And i'll happily be a little slave boy for her. I'm determined to make this time around as stress free as humanly possible.



I'm not sure if I've brought up the subject of our (non-deliberate) bitterness towards friends, Family & even complete strangers who are successful at making babies. We don't try to push these people away or distance ourselves from them, but we have been doing just that, maybe subconsciously, I don't really know. But the reason we have been doing it is because it hurts so much to see people happy with their buns in the oven or little bundles of joy. It seems like we're being punished & it's horrible.
Last night I got one of the most heart warming messages from a good friend, saying that him & his partner are expecting their 1st child together (Both have kids from past relationships) He didn't want to start broadcasting it until he'd made sure we were comfortable with it, because he didn't want to rub salt into to our open wounds.
The fact that he'd thought that he had to do this (which he didn't) is the single nicest gesture I've received in a long long time, & for once we wish them all the luck in the world, & my god do they deserve it


In hindsight, Maybe this blog wasn't one of my better idea's, or perhaps I should have kept it anonymous. With the ever fast coming FET, it means that i'm going to have to either tell people far too early that it's worked, or be the barer of bad news to people who don't really know me. If it was anonymous at least it would be a bit more impersonal & easier to deal with.
But I have started, so I guess it's going to have to finish the story. I'm just not sure how to go about writing about the coming events, I don't want to tempt fate & I cerainly can't bare going through the same thing as last time & then have to feel like I have to write about it. I might not write anything for a few months just to get the 1st 3 month out of the way, then it should be plain sailing by that point. I really don't know what to do

#20 Here we go again

07/01/2013

It's hard to believe its been nearly two months since I last posted anything, where has time gone?
First of all, happy new year to all of you. I hope Santa has treated you well?
I don't know if its the cantankerous old man within me, but I've never really been a fan of christmas. I find, that as a celebration it's kinda lost its way, but I shan't go into that (unless you want me to)
This year (I suppose that should be last year, what with it bring January) I've decided to try make the most of it & try to be a little less anti-Christmas, or antisocial as Libby will no doubt probably tell you.
But I'll tell you what, it bloody worked. Who'd have thought that spending quality time with loved ones & friends can serve well as a distraction from miniature disasters & major catastrophe's.

For any readers that haven't being reading this blog from day one (where have you been?) me & my wife of 5 years & partner for 17 years have recently undergone our first cycle of IVF, because my wife's internal lady parts are a bit crap, This cycle had some very positive results but unfortunately ended with an ectopic pregnancy back in November

09/01/2012

We were back at Rotherham general hospital yesterday for a follow up on the surgery that Libby had to undergo as part of removing the fallopian tube that 'Nemo' the embryo had decided to call home . We had hoped that it would be the end to the first chapter, so we could get on with the next, but annoyingly that wasn't the case at all.
We had always been led to believe that Libby had one fallopian tube that was blocked & serving no purpose, This tube could have been removed during the various medical procedures to find out what the problem is/was. This tube wasn't remove because it wasn't causing any harm.
So when we found out about the ectopic pregnancy, we assumed it was in the good tube & that was the one that was removed in the operation to remove the foetus  & we have never been told anything that would make us think otherwise. Especially when you have medical professionals telling you that the procedure was a success despite the complications, the fetus & tube we're removed & it's now one less thing to go wrong in future attempts at procreating, however it can now never happen naturally. again making us think it was the good tube removed & the blocked one causing no harm.
So why during this appointment with the consultant, are we told that the ectopic was in the blocked tube & why is the good tube still in there? So when we're told it can't happen again, we find that to be nothing short of a lie or ridiculously misleading information. It can happen again.
This fills me with so much dread, I was only just getting used to the idea of starting the Ivf again & now i feel like ive been kicked in the bollocks. Not good

17/01/2013
Luckily we managed to get an appointment at CARE at short notice thanks to a cancellation. Talk about history repeating its self, almost every appointment, either me or Libby have been late or cut it fine, It's usually me though (always) this time both of us are late thanks to the snow, well, its due to other drivers not having a clue how to drive in the snow ...says me the non driver hehehe
It's horrible been late for appointments especially when you get the feeling all the staff are looking at you disapprovingly  I thought I was being paranoid, but Libby felt the same too.
I was expecting a telling off from the nurse we had the appointment with, It's not one of the usual staff from our previous appointments, so wasn't sure what to expect, Luckily she was lovely, (But most of 'em have been)
She had clearly been swotting up on our files, She knew all of Libby's 'complex' medical history leading upto where we are know, the miscarriage, the ectopic, endometriosis & everything inbetween. The solution to all these problems was simple... ''We have got to get you pregnant'' ...well that's easy for you to say, I didn't actually say that, but I wanted to. You see my confidence isn't all that high at the minute, considering the information that we got from Rotherham Hospital. I'm pessimistic at best. thankfully the nurse who I cannot remember the name of, did a pretty good job of reassuring me. Yes the worst can happen again. but the chances are slim. As they say 'lightning never strikes the same place twice'
So anyway, we're giving one of our frozen embryo's a shot. which is good because Libby doesn't have to go through all the injections again. just some pills, (Climoval, to stop the ovaries form working ...I think) plus the Utogestan pessaries that she had to take vaginally during the end stages of the previous attempt (To thicken the womb lining so the embryo can implant itself into it)
The only downside now is waiting to start, the clinic prefer to wait for three menstrual cycles to pass after a failed attempt, so the body can get back to normal (or as normal as can be). So we're looking at mid march time .... this is going to be a long wait

25/01/2013

Ive done a fair bit of research on FET (frozen embryo transfer) & all the info i've found is really positive.
for instance frozen embryo's normally lead to health babies & the success rate is higher

The Independent
Huffington Post
NHS
www.fertilitystories.com/frozenembryo